Tuesday, September 6, 2016

Running Update:
8/17/2016
7.1 mi
1:07:26
8/19/2016
4.5 mi
42:36
8/21/2016
19.0 mi
3:12:36
8/22/2016
3.3 mi
30:40
8/24/2016
7.6 mi
1:11:55
8/26/2016
5.0 mi
48:25
8/29/2016
3.3 mi
29:46
8/31/2016
7.2 mi
1:08:48
9/2/2016
5.0 mi
45:07
9/5/2016
13.1 mi
1:58:02

Yesterday I completed another half marathon for the Children’s Tumor Foundation, this time the New Haven Road Race. For the first time the NHRR offered a half marathon in addition to its 5K and 20K races.  We could not have asked for better weather.  The forecast had been for significant wind and rain to be brought in by Hurricane Hermine, but all it brought was cooler, dryer weather than we’ve had in many weeks.  Perfect for a race! 

I was pleased to finish under 2 hours.  It wasn’t a PR, but out of 73 women in my age group, I placed 16th!  Perhaps all the fast people were scared off by the weather predictions from earlier in the week :)

The day was made even better by the fact that I finally met another NF Mom with whom I had corresponded for almost two years.  Diane, whose 3-year-old son has NF, ran the first leg of a half-marathon relay.  We had tried unsuccessfully to meet up before the start of the race. However, just after I crossed the finish line I saw a spectator wearing a CTF hat—it was Diane!

Lining up
At the start
Near the finish

Meeting Diane!

Me, Diane, and Jane
Grandma, Todd, and the kids were all there to cheer me on!
Jane and me with Diane and her relay partner

Next up: training for the Hartford Marathon on October 8th.

Jane (and Alec and Helen) Update:
Today the kids started back to school!  Both Helen and Alec started new schools today.  Alec is now in 7th grade and Helen in 9th—high school!—and Jane is starting 4th grade, her last year of elementary school.






Jane with her bus stop buddies



NF Update:

To show you how NF is never far from our minds, here is a snap shot of one of the (bazillion) school forms that came home for me to fill out today.  Most kids leave the “Current Medications” space blank.  On Jane’s form I can’t even put an actual approved drug name!  “AZD6244” isn’t an ordinary response.  Thankfully, our school nurse knows all about Jane’s history and treatment, so I don’t have to explain it to her.  But at the start of every school year we always brace ourselves for another round of educating the new people in Jane’s life about NF.


…Which is why we want to support the Children’s Tumor Foundation, for its advocacy on behalf of all folks with NF, and its search for a cure!  THANK YOU to everyone who has donated to our 2016 campaign so far!  If you haven’t yet, please do!  Here’s the link:  

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