Jane Update:
Last week
Jane had her second surgery due to NF.
Readers of this blog will remember that our team of doctors wasn’t sure
what exactly the mass in Jane’s mouth was—an enlargement of a salivary gland
due to her large plexiform neurofibroma, or the neurofibroma itself. All her pre-op exams and testing, including
special MRI sequences, seemed to point to the former. But—surprise!—it was an extension of that
dang plexiform into her tongue after all.
Our stellar surgeon was able to remove the tumor without removing the
salivary gland, and Jane is making a quick recovery. She had a few days of just liquids and soft
foods (milkshakes!) but is now back to a regular diet. Thankfully, the pathology report showed no
signs of malignancy.
The fact that Jane still has to have surgeries to remove neurofibromas despite taking the most effective chemotherapeutic drug available for plexiform neurofibromas daily for the past nine years means we clearly still have more work to do to #endNF.
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| In good spirits before surgery |
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| Recovering at home with the ultimate therapy dog, Henri <3 |
A pre-surgery and post-surgery look at Jane's mouth. (Not for the squeamish!)
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| Can you believe our stoic girl has been living with this in her mouth for six months?? |
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| About one week post-op. Hooray! |
Running Update:
July swimming to date: 11.3 mi 8:41:00
