The DC area is expecting 6-10 inches of snow so our return to NIH was canceled!! As wonderful as our care team at NIH is, I am relieved we don’t have to make this trip. Medical travel for me is always so stressful. Instead, we visited our hometown pediatrician this afternoon for a check-up and blood work. (As Jane’s favorite book characters, Ivy and Bean, would say, “Easy-peasy!”)
I never thought I'd be thankful for more snow this winter!
Since Todd had already promised to take Jane's older brother and sister snowboarding today, Jane and I found ourselves with an unexpected day off without plans! (Unprecedented!) So, at Jane’s request, we headed up to the Connecticut Science Center in Hartford. It was a madhouse there today since all the local schools are on break, but Jane is as happy as a clam—and so, therefore, was I :)
|At the water table|
|The "Skin Crawling" climbing wall--part of the Human Body exhibit|
|Playing with a life-sized erector set|
One of the issues I reported to Jane’s team at NIH today (via e-mail) was her ongoing skin sensitivity. The combination of AZD6244, neurofibromatosis itself (for unknown reasons), and the winter air make for a very itchy Jane! We have managed to keep it somewhat under control with regular oatmeal baths, liberal moisturizers, intermittent steroid creams, and daily Claritin; nevertheless, her torso is crisscrossed with scratches. Another reason to look forward to spring.
2/15/2015 9.1 miles in 1:30:23
I didn't want to fall behind in my training, so I attempted my long run yesterday, post-blizzard, post-shoveling. I felt pretty good while out there, though I struggled on the streets that were sub-optimally plowed—I felt like I was running through sand. I cut it a bit short. (I was supposed to do 11 miles.)
Anyway, last night I could. Not. Move. I felt like I had run a marathon. Ibuprofen was my friend.
But remember, today snow is my friend!