Running Update:

12/11/2015	5.0 mi	48:43
12/13/2015	13.2 mi	2:13:01
12/16/2015	7.6 mi	1:13:03
12/18/2015	5.1 mi	51:48
12/20/2015	10.4 mi	1:41:11
12/24/2015	5.0 mi	48:46

Grand total for 2015:  1005.2 miles!  Hooray!  I will probably get a few more miles in before we head to Canada for the remainder of the holidays, but I was glad to hit the 1000 mile mark by today.  This is my third year in a row to run 1000 miles!  So again I will sing (with apologies to the Proclaimers):

I would run 500 miles

And I would run 500 more

Just to be the Mom who ran 1000 miles

To find an NF Cure!

NF Update:

Our family was honored yesterday to be involved with the Haddam-Killingworth High School Holiday Show and Telethon (http://holidayshow.rsd17.org/).  Every year for the past 27 years this local high school has hosted and broadcast the program with a goal of raising money and awareness for a non-profit organization.  This year they chose to benefit and promote the Children’s Tumor Foundation!  The stories of four Connecticut children with NF were included in the show.  As a result, our family was interviewed by two very talented seniors, Jordan and August, who acted as both reporters and camerawomen.  You can see the end product here or at the link above.

Every day from now until January 4^th the show is being aired three times a day—8am, 2pm, and 7pm—without interruption.  Our piece starts around the 2 hour mark (shortly after a red-nosed children’s chorus), so if you tune in to the streaming you can see us around 10am, 4pm, and 9pm EST each day.  (After the holidays you will be able to pull up any segment of the show any time.)

I was blown away by the scale, quality, and professionalism of this production.  These students and staff are amazing.  The whole school was involved, from answering phones to operating the cameras to providing on-air entertainment to holding applause signs!  What a great experience for these kids.  Even more impressive was the fact that during the live broadcast the telethon raised over $14,000 for CTF!

Jane Update:

I’ll end with the best image we got from 2015: the graph of Jane’s tumor decrease.  Hopeful for this continued trend in 2016.  Happy Holidays, everyone!

Look at that beautiful downward slope!