Running Update:

11/13/2015	5.0 mi	47:16
11/15/2015	12.4 mi	2:03:40
11/18/2015	5.0 mi	46:21
11/20/2015	7.6 mi	1:12:00
11/22/2015	8.7 mi	1:24:09
11/26/2015	5.1 mi	41:53
11/27/2015	5.0 mi	48:00
11/29/2015	13.2 mi	2:11:17
12/2/2015	7.5 mi	1:15:43
12/4/2015	5.1 mi	48:47

Up to 959.0 miles for 2015.  Still plugging along…

Jane Update:

We’re having a lovely start to the holiday season!  We celebrated Thanksgiving in our usual fashion:  Wednesday night a home-cooked pasta dinner with our good friends Neil and Marcia, the Madison Turkey Trot Thanksgiving morning, and then Thanksgiving dinner with Grandma Ag and Aunt Anne.  Tomorrow we’re heading in to New York to enjoy Grandma’s Christmas present to our family—tickets to the Radio City Christmas Spectacular!

NF Update:

Jane and I travel to Bethesda again this weekend for a four day, restaging visit.  Here is our itinerary for the first day alone:

8:00am – Photography, Room 1N230, 1st floor

9:00am – Eye clinic, Outpatient clinic, 10^th Floor

11:00am – Physical exam with Fellow B, Pediatric clinic, 1^st Floor

11:30am – EKG, Radiology, 1^st Floor (or during free time)

12:30pm - Lunch

1:00pm – Cardiac Echo, 5NE, 5^th Floor

2:00pm – Pre-Anesthesia, Room 2C523, 2^nd Floor

3:15pm – Non-sedated MRI (Face, sinus, ENT), Radiology 1^st floor

I am exhausted just thinking about it, and I’m not even the one having the testing done!  I am hopeful that Jane will be able to hang on and lay still through the MRI scan—she’s done so well in practice.

If the non-sedated scan is adequate, we’ll have the following morning off from testing, since it is being reserved for a sedated scan only if it is necessary.  If we have the morning free we might even venture into DC to do some sightseeing!

~~~

Other NF news, we were invited to participate in a fund-raising telethon being run by a local high school!  Every year Haddam-Killingworth High School puts on a Holiday Show and telethon to raise money and awareness for various charities.  This year they have chosen to support the Children’s Tumor Foundation!  They plan to feature several Connecticut children with neurofibromatosis.  This week two seniors from H-K high school came to our house to record and interview Jane, Todd, and me, about daily life with NF.  Check out their progress here (http://holidayshow.rsd17.org/), and watch this space for the broadcast!