Friday, March 4, 2016

Running Update:
2/16/2016
3.2 mi
30:52
2/17/2016
5.0 mi
48:52
2/19/2016
7.5 mi
1:15:37
2/21/2016
10.2 mi
1:41:07
2/23/2016
3.2 mi
29:59
2/24/2016
7.6 mi
1:16:13
2/26/2016
5.0 mi
46:37
2/28/2016
16.2 mi
2:36:57
3/2/2016
7.5 mi
1:16:17
3/4/2016
5.0 mi
48:18

Two weeks until the New York Half, six weeks until the Boston Marathon!

Each spring John Hancock, the principle sponsor of the Boston Marathon, hangs hundreds of Boston Marathon street banners throughout the city to showcase excitement for the race. Images include elite athletes, spectators, qualified and non-profit runners, and race officials.

This year for the first time, John Hancock is providing anyone with the chance to appear on one of 26 banners that will hang on Boylston Street, leading up to the iconic finish line.  On its website you can create a personalized image of yourself on a digital banner featuring one of the following words: gratitude, passion, pride, dedication, inspired, drive, psyched, believe, heart, strength, glory and spirit. Among the entries, 26 will be made into street banners that will line the final stretch of the race on Patriots' Day.

Here is the banner I created!  I think it’s worthy of being displayed on Boylston Street :)


You can see all of the entries at www.jhextramile.com/runbold/submissionsgallery.

NF Update:
It’s time to donate!

Usually we wait until after NF Awareness Month in May each year, but this year because of the Boston Marathon in April we’re starting our fundraising campaign a little early!  If you are able, 
We’ll be raising funds for both NF Northeast and the Children’s Tumor Foundation this year.  Please help us make a big splash before Boston!

Jane Update:
March 2nd was Read Across America Day in honor of Dr. Seuss’ birthday.  To celebrate it, Jane’s school has lots of special activities, including a guest who read to her class—Senator Ted Kennedy, Jr!  Senator Kennedy is our recently-elected state senator, son of Senator Edward Kennedy, and nephew of President John F Kennedy and Senator Robert F Kennedy.  He also lost his right leg to osteosarcoma when he was just 12 years old.  I hadn’t known he was going to be visiting Jane’s school, but learned it in this email from Jane’s 3rd grade teacher:

Today we had Ted Kennedy, Jr. come to the class as a guest reader in honor of Dr. Seuss’ birthday.  Jane answered many questions with a positive and lively attitude.  At the end, the children were getting autographs.  Senator Kennedy told Jane that he enjoyed the spark she possessed during his visit.  I was very proud of her and complimented her!

We asked Jane about Sen Kennedy’s visit that evening, and she excitedly ran to her backpack and produced these autographs:
The bottom autograph reads, "To Helen and Alec, You have a nice sister."
Apparently Jane had asked the senator for an extra autograph for her brother and sister <3

I wrote to Sen Kennedy thanking him for his kindness towards Jane…

Dear Senator Kennedy,
Thank you for reading at Jeffrey School in Madison on Dr Seuss Day! My daughter, Jane, was thrilled to have you. 
I was tickled to get an email from Jane's teacher letting me know that you enjoyed her "spark". This word describes her well! Jane has neurofibromatosis and has been on various experimental chemotherapies through the NIH since she was 3 years old. As you could see, it hasn't held her back at all, and we all anticipate great things from her!
Thank you again for your attention to her, and thank you for your work on behalf of the 12th district.
Sincerely,
Kristina Rath

 …and he wrote a lovely note back:
Hello Kristina,
Thank you for your email. I had a great time reading to the kids and speaking with them yesterday. It sounds as if Jane is a very strong young woman and will meet any type of challenge she comes across in her life. Again, thank you for the note.
Sincerely,
Ted
Our family agreed that maybe someday Jane will be the head of the National Institutes of Health under a President Kennedy :)
~~~
Finally, the tooth fairy will be coming to our house again tonight!  It seemed like Jane’s top front tooth was going to hang on forever, but it finally came loose today (with a helpful nudge from a friend!)

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