Running Update:

12/3/2014	5.1 mi	46:38
12/5/2014	5.0 mi	45:43
12/7/2014	8.0 mi	1:15:58
12/10/2014	7.5 mi	1:14:19
12/14/2014	7.6 mi	1:11:37
12/17/2014	5.0 mi	47:35
12/19/2014	5.1 mi	45:40
12/21/2014	7.6 mi	1:16:13

Total for 2014:  1000.2 miles!  Yay!  I may still do a couple of short runs before we head to Canada for holiday celebrations, but I’ve reached my goal for the year. 

So now I can sing (with apologies to the Proclaimers):

But I would run five hundred miles and I would run five hundred more

Just to be the Mom who ran a thousand miles to find an NF Cure!

Jane/NF Update:

As you all know by now, we got good news again from our recent visit to NIH:  Jane’s tumor has decreased in volume another 8% since her last MRI in January!  That makes a total of 24% reduction since starting AZD6244.  Such a wonderful Christmas present!

A recap of Jane’s first nine months in this clinical trial:

10 cycles of experimental chemotherapy

16 blood draws

6 NIH visits

4 echocardiograms

4 dilated eye exams

4 EKGs

+             3 sedated MRIs

__________________________________________

24% reduction in tumor volume!!

Jane is now considered a “partial responder” to the medication.  Here is the official note:

May it continue in 2015!

Happy Holidays, everyone.