Running Update:
9/10/2014
|
9.1
mi
|
1:24:10
|
9/12/2014
|
5.0
mi
|
44:04
|
9/14/2014
|
15.0
mi
|
2:26:10
|
Less
than a month until the Hartford Marathon!
I’ve got a 22 mile training run planned for next weekend and then I get
to taper.
Jane and NF Update:
Yesterday
was the 2nd Annual NF Walk in Putnam, CT! It was the first official NF event we’ve
attended as a family. Todd and the kids
always attend my running races, but usually I am the only person at these
events fund raising for the Children’s Tumor Foundation. The NF Walk was attended only by people supporting the Children’s Tumor Foundation! At first Jane seemed a little self-conscious. I don’t think she knew what to expect (nor did
I, for that matter…), but shortly after we arrived the walk’s organizer,
Rhianna Curotto, gave Jane a NF Hero cape and streamers, and she was off!
The
walk was an out-and-back stroll along the Quinebaug River, and our family
walked in the middle of the pack. When
we reached the turn-around point, Jane noticed that the parade was being led by
three kids holding a CTF banner. She
asked, “How come they get to be up
front?” I told her there was no
particular reason, that she could walk up front if she wanted. Before I knew it she had gone up to the trio
and asked if she could help carry the banner, too!
Face painting |
Showing off her butterfly |
By the Quinebaug River |
Aunt Anne came all the way from Boston to walk with us! |
Aunt Anne and Grandma Ag |
After
the walk we enjoyed a cookout and raffle.
Jane spent the rest of the event dressing up in the photo booth and
taking pictures with her new friends.
Dressing up for photos |
Each person at the walk who has neurofibromatosis was given a medal. Jane was happy to accept hers. |
Jane
won a basket of crafting items, including a small photo album. That night, after we were home, she put all
her photo strips in the album and carefully labelled them “NF Walk 9-13-14”. She pointed to the pictures and said, “This
girl had the tumor, too.” I think, in
her own way, Jane was very happy to finally have met other children affected by
NF.
I love the cape! And what a wonderful way for the kids to identify and make friends with other kids who, as Jane says, have the tumor too.
ReplyDeleteThank you, Alice! It means so much to me that you always read my blog posts <3
Delete