Running Update:

5/7  7.6 miles in 1:11:04

5/9  5.1 miles in 44:13

5/11  5.0 miles in 47:45

5/14  7.6 miles in 1:09:35

5/16  5.1 miles in 44:44

5/18  7.5 miles in 1:08:32

Perfect running weather lately!

Jane Update:

Getting ready to head back to NIH tomorrow for our latest check-up, but before I write about that I’ll share some fun items.

Soccer season is in full swing.  Jane’s team is the Blue Lightning Bolts!  Here's Jane in action.

Jane’s class put on a performance of Traditional Tales this week.  Jane played the Middle Billy Goat in “Three Billy Goats Gruff” and played the Cow in “Jack and the Beanstalk”.  So proud :)

Finally, all year the students of Jane’s elementary school completed monthly reading logs with hopes of winning one of three prizes offered to the classes that read the most.  We learned this week that Jane’s class won the First Place Prize—a party at Bounce U!

NF Update:

What to pack to keep a 7 year old entertained at the hospital when our itinerary looks like this?

Tue. 5/20th
8:15am – Labs & Vital Signs (3 Hts & 3 Wts), Pediatric Clinic, 1st Floor
9am – Physical exam, Pediatric Clinic, 1st Floor
10am – Eye Clinic appointment, 10th Floor, Outpatient Clinic

(The eye exam is the worst, as it seems interminable.  It includes visual acuity testing, a slit lamp exam, a dilated fundus exam, ocular coherence tomography (a retinal exam) and retinal photographs.)

Lunch
12:45pm – EKG, 1st Floor
1pm – Echocardiogram, 5th Floor
1:30pm – Dermatology appointment, 13th Floor Outpatient Clinic

Wed. 5/21st
9am – Allergy and Immunology appointment, Pediatric Clinic, 1st Floor
11am – Family Meeting, Pediatric Clinic, 1st Floor
Home
               

Well, this is what I pack, at least: 

colored pencils,

crayons,

markers,

coloring pages,

blank paper,

two new coloring books,

two new sticker books,

Ivy and Bean books 6, 7, 8, and 9,

the complete set of Frog and Toad books,

Playdoh,

paper dolls,

new $1 sunglasses (for after her eye exam),

snacks, snacks, and more snacks,

an old iPhone for watching Jake and the Neverland Pirates videos (natch).

I plan to dole the new items out one at a time, as needed.  Will let you know if it works!