Running Update:
1/4/2019
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Run
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5.0 mi
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49:44
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1/5/2019
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Swim
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2100.0 yd
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||
1/6/2019
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Run
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7.6 mi
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1:17:02
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1/8/2019
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Swim
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1600.0 yd
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||
1/9/2019
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Run
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5.0 mi
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46:17
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1/11/2019
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Run
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5.0 mi
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47:30
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1/12/2019
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Swim
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2100.0 yd
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||
1/13/2019
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Run
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7.6 mi
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1:17:39
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1/15/2019
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Run
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3.2 mi
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30:58
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1/16/2019
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Run
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6.0 mi
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59:27
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1/18/2019
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Swim
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2100.0 yd
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||
1/19/2019
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Run
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8.0 mi
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1:18:39
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1/20/2019
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Run
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4.0 mi
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39:01
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1/21/2019
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Swim
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2100.0 yd
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||
1/23/2019
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Run
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5.0 mi
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48:48
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Happy New
Year, everyone!
We’re off
and running already. NF doesn’t stop, so
we don’t stop! I’ve just updated our Children’s
Tumor Foundation fund raising website for 2019.
Check it out here: www.KRath4Jane.com
Here is our
plan of events for the year:
NYC Half Marathon—Sunday, March 17th
NYC Half Marathon—Sunday, March 17th
Vermont City Marathon—Sunday, May 26th
New Haven Road Race Half Marathon—Monday, September 2nd
Fall marathon—TBD!
This is my
tenth year of fund-raising for CTF! My
first race with the NF Endurance Team was the New Haven Road Race 20K in
2009. Now here we are, fourteen marathons,
sixteen half-marathons, and $180,000 for CTF later, not to mention three different
clinical trials, two dozen MRIs, and countless other tests and appointments for
Jane. All to end NF.
Jane Update:
I think the
dry winter air and increased dose of selumetinib finally caught up with Jane—shortly
after the New Year she was covered in red, raw, itchy skin. She’s taken oatmeal baths, we’ve slathered
her with heavy duty moisturizer and Vaseline, and we’ve thrown in Claritin for
good measure to get her some relief.
Between her skin and then a second painful ingrown toenail within a
month (for some strange reason, selumetinib affects the nail beds, in addition
to the skin), Jane had reached her limit that week. It’s been a long time since she’s cried
because of something NF-related. It broke
my heart.
It turned out
that Jane actually developed a paronychia, a nail bed infection that has also
been found to be a side effect of her medication. The treatment has included antibiotics, foot
soaks, steroid tape for her toe, and temporarily stopping the selumetinib. Jane was off selumetinib for about two weeks
and just restarted it last night now that her toe is finally healing. We’re hoping she doesn’t have to repeat that
experience.
NF Update:
In the
spring of 2017 Jane and I gave an interview about her clinical trial to the
Center for Cancer Research at the National Institutes of Health. At the time, the interview was posted on the center’s
website, but I only discovered recently (thanks to my friend Renie, another NF
Mom!) that Jane and I are also featured on several other CCR pages as well! How cool is that?
Here is the main page about clinical trials: https://ccr.cancer.gov/clinical-trials
Here is the News page: https://ccr.cancer.gov/news/horizons
And if you click on our photo in the News page, it brings you to this article: https://ccr.cancer.gov/news/horizons/article/study-rare-tumors
Jane and I
return to NIH next month for another check-up.
As we say before every MRI, think shrink!
