Running Update:
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11/25/2018
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Run
|
|
7.7 mi
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1:15:13
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11/27/2018
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Swim
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|
1500.0 yd
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|
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11/28/2018
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Run
|
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7.6 mi
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1:15:37
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12/1/2018
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Swim
|
|
2100.0 yd
|
|
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12/2/2018
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Run
|
|
7.6 mi
|
1:19:06
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12/7/2018
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Run
|
|
3.3 mi
|
32:10
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12/8/2018
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Swim
|
|
2100.0 yd
|
|
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12/9/2018
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Run
|
|
5.0 mi
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49:13
|
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12/12/2018
|
Run
|
|
5.0 mi
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49:23
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|
12/15/2018
|
Swim
|
|
2100.0 yd
|
|
|
12/16/2018
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Run
|
|
5.0 mi
|
49:45
|
|
12/21/2018
|
Swim
|
|
2100.0 yd
|
|
|
12/22/2018
|
Run
|
|
5.0 mi
|
49:27
|
|
12/23/2018
|
Swim
|
|
2100.0 yd
|
I'm only at 956 miles for the year, so it
looks like I'll miss 1000 miles for the first time in 6 years! I knew
when we entered December that I'd really have to be diligent and do several
long runs in order to top 1000, and I decided I didn't want to work that hard
:) I've continued running and swimming, but just for
"fun". (Actually, if I add in my 47.7 swimming miles it
bumps me over 1000 miles, so I’ll take it!)
It’s all
worth it. Running those 956 miles helped
me raise $17,361 for the Children’s
Tumor Foundation in 2018! Thanks to all of
you who donated to help us #EndNF!
I’ve already
registered to run the 2019 NYC Half Marathon in March, the Vermont City Marathon
in May, and the New Haven Road Race Half Marathon in September, all for
CTF. My fall marathon is still up in the
air—maybe Chicago this year? Watch this
space!
NF Update:
Jane has
been tolerating 30mg of selumetinib twice a day since our last visit to NIH
three months ago. In an effort to
prevent her from receiving a sub-therapeutic dose of the medication, which is
based on height and weight, we had Jane re-measured at her pediatrician’s
office a few weeks ago. Sure enough,
she’s grown another inch since she was last measured, so we’re going to
increase her selumetinib dose again.
Starting in January she’ll go to 35mg in the morning and 30mg in the
evening until we return to NIH in mid-February.
Jane Update:
Jane’s been
a busy girl this past month. On December 1st Jane
held her own food drive! Jane’s class is
studying food and water insecurity at school and for a project Jane decided to
hold a food drive to benefit the Madison Food Pantry. She did pretty much all
the work herself and had a tremendous response!
 |
| Geting started |
 |
| A full basket after only 20 minutes! |
 |
| With one of her teachers <3 |
 |
| A cartful in just under an hour! |
 |
| Grandma donated |
 |
| With her social studies teacher |
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| After 2 hour! |
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| With another favorite teacher |
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| All packed up and proud (with a celebratory cup of hot chocolate) |
 |
| In the end she collected 168 cans of tuna, 19 jars of peanut butter, 19 boxes of cereal, 49 boxes of pasta, 63 cans of soup, assorted other groceries, and $49.65 in cash! <3 |
Afterwards, Jane submitted this reflection to her teachers:
”For
the food drive we were successful. We collected 331 items of food such as
168 cans of tuna, which we needed the most, 63 cans of soup and $49.65 in cash
donations. The reason why I think it was so successful was because we had one
person standing outside handing out slips saying what food was needed for the
food drive, and one person sitting at the exit collecting the food and
donations. We also posted the announcement to the Town of Madison
Facebook page. It felt weird when I was
asking for food because I had food and I didn’t need any. And when I was
collecting the food I felt gratitude for the people who donated because they
spent a little extra money for the people in need that they didn’t know.”
 |
| The thoughtful note we received from Jane's teachers |
~~~
Then last
week Jane became one of three finalists in her sixth grade Geography Bee! In January she’ll go on to compete against
the seventh and eighth graders in our town.
We’re so proud!
The contest
started with each student answering questions individually. Once only six students remained, the format
changed to a panel. The three students
who had the most correct answers in this final round advance to the next contest. Below is a clip of the final round (courtesy
of our friend Dana). Jane is in pink at
the far left.
For those who don’t want to watch the whole four minutes, the final three questions were:
1 The Orange River lies in Lesotho in the Drakensburg Mountains on which continent?
2 The City of Auckland is home to the largest concentration of indigenous Maori people in what country?
3 The southernmost portion of the Yucatan Peninsula is made up of Belize and which other Central American country?
Speaking of foreign
geography, we’ll be headed to the prairies of mid-western Canada to celebrate
the New Year :) Have a wonderful holiday
week, everyone! See you in 2019.
