Wednesday, March 22, 2023

The 2023 NYC Half Marathon

2023 NYC Half

3/19/23              13.1 miles          2:03:44

This year’s NYC Half was chilly (30F at both the start and the finish!) but I was faster than either of the halfs (halves?) I ran last year.  This was my 6th in-person NYC Half, but because of pandemic cancelations, I hadn’t run this race since 2019.  I had forgotten how special it is!  So many iconic New York City streets are closed to everyone but the runners—we run over the Manhattan Bridge with views of the Statue of Liberty, up FDR Drive looking out across the East River, across Manhattan on 42nd Street, through Times Square itself and into Central Park.  It is a unique and thrilling experience.

Here's an overview of the course:


At the Expo collecting my bib

Every year they the names of all the participants on one wall


Obligatory pre-race gear shot.  This year I had to add layers after this photo because of the cold!

Our CTF NF Endurance Team Captain, Lydia, was cheering for us and snapping photos at mile 10. 

42nd Street

And, in one of my stranger race experiences, Senate Majority Leader Chuck Schumer was standing in the middle of the finish line giving high-fives!  Not something I expected.


Finished!

It didn't warm up at all between the start and finish


Next up—the Cincinnati Flying Pig Marathon in May!

Thank you to everyone who has already donated to our campaign for the Children’s Tumor Foundation this year!
And if you haven’t yet, you can always donate here: www.KRath4Jane.com

Wednesday, March 1, 2023

Rare Disease Day

Running Update:

2/20/2023

7.6 mi

1:17:53

2/24/2023

7.6 mi

1:15:04

2/26/2023

14.1 mi

2:24:52

2/27/2023

5.0 mi

50:40

3/1/2023

9.2 mi

1:32:31

Just a little over two weeks to our first race of the year, the NYC Half Marathon!  This is the race I had to defer from last year because I had COVID.  It will be the seventh time I’m running this event.


NF Update:
Yesterday was Rare Disease Day (www.rarediseaseday.org)!  First established in in 2008 by the European Organisation of Rare Diseases, Rare Disease Day is the globally-coordinated movement to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families.  Rare Disease Day is observed every year on 28 February (or 29 in leap years)—the rarest day of the year.
 
This year I was asked to participate in a Rare Disease Day online symposium at the University of Buffalo School of Medicine!  I was among a dozen or so speakers giving short presentations, each on a different rare disease.  The audience was mostly medical students, but members of the public were invited to join as well.   The meeting itself wasn't recorded, for privacy reasons, because some of the presenters interviewed patients in real time; but I was able to record my talk so that it could be shared.  I hope you enjoy it!