Running Update:
|
11/4/2015
|
4.9 mi
|
48:03
|
|
11/6/2015
|
5.0 mi
|
48:05
|
|
11/8/2015
|
9.1 mi
|
1:28:51
|
|
11/11/2015
|
7.6 mi
|
1:15:04
|
Still plugging along. 115.5 miles to go in order to reach 1000 this year
NF Update:
Yesterday the
kids had a half day of school, so we visited Todd at work so that Jane could
have another practice MRI before her next real MRI at NIH in December. She hopped right up on the MRI exam table,
instructed Todd as to how to arrange the pillows for her head and knees, and
allowed herself to be pushed into the scanner without a second thought. I sat next to her so I could hold her hand,
or tap out a rhythm on her foot along with the sounds of the machine, or pass
Puppy to her if she wanted to snuggle him.
Once again she stayed still for 30 minutes’ worth of imaging! Bring it on, NIH—Jane’s ready for a
non-sedated scan!!
Some
random thoughts on hair…
Jane's
chemotherapy makes her hair thin and brittle—this is why we keep it short (so
you don't notice the bald patches as much). It also has the curious effect of turning her
hair blonde. While this style might suit Jane, and while some people might
think having blonde hair is a perk, it is a constant reminder to me of the
powerful medications we are putting into her body.
Don’t get me
wrong—I am very grateful that this medicine seems to be keeping her tumor
stable, and that it doesn't have some of the awful effects of some of the other
chemo she's taken in the past (frequent nausea, vomiting). But it still makes
her itch terribly at times; it affects her taste, and makes her tire more
easily. And I look longingly (perhaps even though she's doesn't seem to)
at all the other little girls she
knows, with their hair in flowing pony tails.
 |
| I am somewhat placated by the fact that I had short hair myself when I was Jane’s age (thanks to Dorothy Hamill). |
I feel a pang
every time someone compliments her hair, because it's all I can do not to blurt
out, "It's because of her chemotherapy! I wouldn't have it this way
if it were up to me!" But that's not fair to the well-meaning
individual. After all, she does look adorable, and how would anyone
else know it’s because of chemo? These
are thoughts I sometimes struggle with.
Jane (and family) Update:
The fall soccer
season ended this past weekend with a bang.
All three kids had games, as usual, and then we had a chance to see both
the Yale Men’s and Women’s soccer teams play their last home games of the
season! It was a late night, with the
Men’s game going into two overtimes (it ended in a tie against Brown), but very
exciting. The kids were even allowed on
the field after the game to talk with the players and to get their autographs :)
Readers of this
blog may have noticed that Helen has become more camera shy of late, so here are a couple of pictures of Helen in action on the soccer pitch.
She plays defense, and has a remarkable kick!
