Tuesday, June 28, 2022

End-of-School Update

 

Running Update:

Month of June 2022:      76.5 mi   12:43:18.

I took a longer than usual break after the Providence Marathon (due to a non-running injury) but started running again June 1.  And as of last week I’m officially in marathon training again, this time for the Chicago Marathon!  I’ll be running with the Children’s Tumor Foundation NF Endurance Team (of course).  It had never been my goal to hit all six World Marathon Majors (Tokyo, Boston, London, Berlin, Chicago, and New York) but by running Chicago I’ll have done half of them.  Maybe I’ll look for a race abroad next year…?

But for fall 2022, here is our schedule:

New Haven Road Race Half Marathon—Monday, September 5

Chicago Marathon--Sunday, October 9

Philadelphia Half Marathon—Saturday, November 19

You can always donate to our NF Endurance campaign here:

www.KRath4Jane.com

 

NF Update

Tomorrow we return to the National Institutes of Health for Jane’s semi-annual check-up and MRI.  Readers of this blog will recall that our trip in January was canceled due to the Omicron COVID surge and we had to do all our testing at home, so this will be our first time back to Bethesda since last August.  It will also be Jane’s first MRI since then, and her first full-body MRI since we discovered the now-removed neurofibroma on her kidney in 2019.  We’re hoping for no new discoveries.

On a related note: this is the medication diary Jane has to keep for NIH. A “cycle” of chemotherapy is four weeks.  In the month of June, Jane completed Cycle 100 of selumetinib. (She started this trial in March 2014.) A bittersweet milestone.




 

Jane and Family Update

Another school year done!  Jane finished her first year of high school with High Honors, and with a special Underclassmen Award in History.  Such a superstar <3




After a successful sophomore year at Mount Holyoke, Helen arrived home in May.  Shortly thereafter she had her wisdom teeth removed as scheduled, but less than a week into her recovery she came down with COVID!  (After avoiding it for over two years!)  Not a fun way to start the summer.  Thankfully, she bounced back quickly and is enjoying her break—and we are very much enjoying having her around <3

Alec graduated high school!  His last week of school was filled with lots of fun activities, including the his final Track Banquet and the Senior Prom.  We are so proud of him and are excited to see what wonderful things he does at Lafayette College.


All the seniors on the Track and Field team were given sweatshirts from their intended college!

With Mom and Dad, ready for Senior Prom



And graduation!






Helen hand-painted the Lafayette logo on Alec's mortarboard <3